Fear or no fear?

I haven’t written a blog post in a while. I admit, I’m afraid to share my thoughts and feelings sometimes. Or maybe a little more frequently than just sometimes. Fear is a powerful and limiting emotion.  I have heard people ask the question: “What would I do if I had no fear?” This question can …

The Sensory Experience

In this post I will attempt immerse you in the sensory experience of being an MS patient. As my favorite Youtube yogi, Adrienne says, “Take a comfortable seat of your choice.” Let’s begin. I have been considering telling you a story that takes you through an elaborate and bizarre scenario to illustrate the odd sensations …

Milad Fakurian- image of a brain

I Have Brain Damage

It is difficult to have compassion for yourself. To be more specific, it is difficult for me to have compassion for myself. I has always been a desire of mine to do things excellently, and it’s strange to go from being able to perform at an “excellent” level to needing assistance to reach the “sufficient” …

Photo by Max Bender on Unsplash

Prematurely Old

I used to see a therapist who helped me with a few things. One of the things he taught me was that almost all of the symptoms I experience due to MS are symptoms that EVERYONE will experience when they get older. Waking up with aches and pains, unsteady balance, low energy, needing to sit …

Medical Trauma

A friend of mine once said that if you have a chronic illness you accumulate medical trauma and have to keep returning “to the scene of the crime.” That’s one of the hard things about having a chronic illness. You will always have to go back to the doctor. One of my traumatic medical experiences …

The tale of diagnosis: Part 2

My parents asked two of my siblings to drive me to back to my parents’ home. My brother took us to lunch at my favorite restaurant and said I was eating sloppily. My neurologist told my family that it’s extremely rare for a female of my age to go downhill so rapidly. My mom and …

Three Hacks to Reduce Stress in the Moment

Uncertainty is the theme of a life with chronic illnesses. It takes a lot of effort not to be overwhelmed with fear each time you experience anything new or worsening. Then things decline quicker simply because of the level of stress on your body from the anxiety you feel. How can you combat this downward …

Top 3 things to manage fatigue

1- Medication:  Currently I am taking a medication to help manage my fatigue. When I took it for the first time it was like a sparkling wave of energy rushing through my body. I felt like a super hero whose magical power involved walking and holding a baby. Unfortunately, I no longer feel the wave …

The tale of diagnosis: Part 1

At the beginning of March in 2015 I woke up to a strange sensation. The right half of my body was numb. I continued living life as normal: going to my college classes, participating in social events, and exercising. Two weeks later I went to the doctor and in order to eliminate “the serious stuff” …

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