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Two Symptoms People Avoid Mentioning

The top two forbidden topics, and this is self-declared, are bladder and bowel difficulties. I have seen people with MS post on forums about how hesitant they are to bring up their issues with their doctor because it’s an uncomfortable topic. Let’s be honest. It’s embarrassing! No one wants to admit they pooped their pants. …

Nausea. Start with a story, end with a poem

Nausea and I have a very long and complicated relationship.  My first memory of nausea goes back to my 4th grade year. We had an amazing field trip called “The Rendezvous.” We spent time in the classroom learning about mountain men and trading posts. The field trip involved dressing up like mountain men and bringing …

The Trouble with Sleeping

I’ve always found it funny how much children resist napping and adults relish the opportunity for a midday snooze. Perhaps the switch happens during the sleep-deprived years of most people’s early twenties. Maybe we just get more tired as we get older. I may never know.  What I DO know is that sleep is so …

How to mom when you’re dead tired

I wake up most mornings feeling like I didn’t get any sleep. When in actuality, I slept all night long like a snoring log. Feeling tired is something every momma can relate to. When you add an illness of some sort it ramps up from “feeling tired” to experiencing “fatigue.”  I like to describe the …

The Sensory Experience

In this post I will attempt immerse you in the sensory experience of being an MS patient. As my favorite Youtube yogi, Adrienne says, “Take a comfortable seat of your choice.” Let’s begin. I have been considering telling you a story that takes you through an elaborate and bizarre scenario to illustrate the odd sensations …

Milad Fakurian- image of a brain

I Have Brain Damage

It is difficult to have compassion for yourself. To be more specific, it is difficult for me to have compassion for myself. I has always been a desire of mine to do things excellently, and it’s strange to go from being able to perform at an “excellent” level to needing assistance to reach the “sufficient” …

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